Outside in the sun!We had Braden's latest hospital visit yesterday. He had a repeat swallow study done and then an appointment with pulmonology after. His swallow study did not go that well. He was showing signs of penetration of the double thick liquid with most swallows so the radiologist/pathologist did not want to try any thinner liquids. She noticed that he sounded hoarse and my mom (who came along with Braden and I) mentioned that she had been noticing that for a few days now. I had noticed it as well, along with some more raspiness in his breathing over the weekend. The radiologist mentioned that she did not think that his swallowing was regressing but that probably his reflux was the main contributor to these things.
When we saw the pulmonary doctor he also agreed with that theory and has increased Braden's reflux medication. He thinks that the higher dose with be able to keep the reflux under control and therefore not cause irritation and swelling in his throat. With that under control we should notice an improvement over the next two to three weeks. We are hopeful that this is the case and that for now we will be able to continue with thickened feeds with a cup and avoid having a G-tube put in.
We have another appointment scheduled for the middle of September and if all stays stable we will continue with what we are doing for the rest of the summer. We are looking forward to some camping holidays and to being outside in the sun. Braden loves to play outside and he is walking all over the place now. I think he will enjoy the summer!!
Thanks for keeping Braden and our family in your prayers. The support we recieve is such a blessing to us!
Braden is also very thankful for his new little boy cousin on the VP side of the family! All those girls...ahhh now at least he will have a break once in a while!!
Thomas Peter VP was born on Saturday June 17 and after some complications over the weekend has gone home today with his mom and dad and big sister Mariam!
Praise God from whom all blessings flow...
